A breast cancer patient has described how treatment for the disease plunged her into a "horrendous" menopause which left her struggling to stand and suffering dozens of hot flushes a day.
Rachel Bowman said more needs to be done to help women undergoing cancer therapies to deal with the consequences of going into sudden and severe menopause, sometimes prematurely.
According to the organisation, Menopause and Cancer, 40% of women under 40 and 90% of those over 40 go into permanent menopause as a result of cancer treatment, with "many" finding the symptoms even harder to cope with than the side effects of chemotherapy, radiotherapy, and surgery.
READ MORE:
- Explainer: What is the menopause, when does it start, what are the symptoms?
- COMMENT 'Many women find menopause more challenging than cancer treatments'
- Linda Barker: Menopause gave me alopecia and 'hideous' forgetfulness
- Dani Garavelli: I admire Davina McCall, but I didn't want to be a crusader
Ms Bowman, originally from Falkland in Fife, is sharing her own experience to coincide with World Menopause Day on October 18.
The retail director was 46 when she was diagnosed in 2022 with Stage 1 invasive ductal carcinoma after discovering a lump in her breast.
Prior to the diagnosis she had been taking hormone replacement therapy (HRT) to alleviate symptoms of perimenopause including anxiety, burning mouth syndrome, and unusually heavy periods.
She said: "I loved it - it just eradicated any of the symptoms I'd had, which was amazing.
"And I have to be really clear that I do not blame HRT for my breast cancer - I do not think it caused my breast cancer.
"If I'm honest, initially when I was diagnosed, my first thought was 'oh my God, now I need to stop HRT'.
"My first panic was about that - then I quickly realised I had cancer, and I had to focus on that more."
Following a mastectomy, a biopsy graded Ms Bowman with a medium to high risk of recurrence.
She was placed on the hormone-blocking drug Zoladex, to stop her ovaries from generating oestrogen, before undergoing four months of chemotherapy after which she began to take the preventative breast cancer drug Tamoxifen.
The combination "threw me into menopause", said Ms Bowman.
"Although I had had some symptoms of perimenopause before, this was much more intense," she said.
"When I saw the oncologist, I was advised that I would experience 'menopause-like symptoms' - no one said to me 'you'll be put into the menopause'.
"One day you're producing oestrogen, and the next day you're not.
"I was having about 20 hot flushes a day, and my joint pain was so bad I couldn’t stand up in the morning - I was like an old lady.
"I also had terrible brain fog. In meetings, I'd struggle to remember the right word or lose the thread in conversations.
"Going through the menopause, there's the mental side of it as well. That's the worst, because you doubt yourself.
"My confidence really took a knock."
Ms Bowman, who now lives in Brighton, said that when she went back to her oncologist to seek help for "horrendous" menopause symptoms she was told to "take a supplement".
"They just said 'it's not my area of expertise'. That made me very, very frustrated."
Seeking advice, Ms Bowman turned to Menopause and Cancer and contacted founder Danni Binnington, who hosts its podcast.
She also credits the not-for-profit organisation with putting her in touch with a support system of other patients.
She said: "Recently we got together and did a sponsored walk, and for the whole weekend you have the chance to chat to lots of people who've been through similar experiences to you.
"There's something really cathartic about being in a community where you're able to speak freely and share what's worked and hasn't worked for you, and listen to others.
"That's been a massive help to me."
When her cancer returned earlier this year, Ms Bowman was switched onto another drug, Letrozole, which strips away oestrogen.
The side effects were so bad she decided to pause treatment after four months.
She said: "I'm still on a break and I'll have to make a decision in a few weeks about what I do.
"It really made me feel very, very low in terms of my mood.
"I'm really grateful that we've got drugs to help us and keep us alive, but when they impact on your quality of life it's a difficult choice.
"You're taking something to reduce the risk of cancer coming back, but it's making you feel crap."
READ MORE:
- Uzma Mir: Menopause can be hell - but it does have an upside
- Menopause symptoms left woman in A&E fearing she was having heart attack
- Tribunal rules woman's menopause was 'disability' in £19,000 discrimination case
Ms Bowman said that if she could "wave a magic wand" she would like to see menopause specialists embedded within NHS breast care centres so that patients can get advice as soon as they are diagnosed.
She said: "For everybody I've met, there's been something where either they've not been informed fully at the point when they're starting treatment about how it's going to impact them, or when they experience these symptoms they don't then get help to manage or minimise them.
"I get it. The NHS and the doctors, they were interested in treating my cancer.
"They want to keep me alive and not get cancer. But I want to stay alive and have a good life.
"It's not everywhere. There are some amazing doctors. My oncologist right now is great at looking at things holistically.
"But there are women in the community who say that they haven't always been aware of or able to get the help they need.
"Initially, at diagnosis, I would have loved to have someone I could speak to in my breast care centre to help me manage my symptoms.
"Someone to say 'okay, having this treatment is going to throw you into the menopause, we advise you to speak to the menopause specialist in our clinic and here's what you need to know'.
"That would have been amazing."
Why are you making commenting on The Herald only available to subscribers?
It should have been a safe space for informed debate, somewhere for readers to discuss issues around the biggest stories of the day, but all too often the below the line comments on most websites have become bogged down by off-topic discussions and abuse.
heraldscotland.com is tackling this problem by allowing only subscribers to comment.
We are doing this to improve the experience for our loyal readers and we believe it will reduce the ability of trolls and troublemakers, who occasionally find their way onto our site, to abuse our journalists and readers. We also hope it will help the comments section fulfil its promise as a part of Scotland's conversation with itself.
We are lucky at The Herald. We are read by an informed, educated readership who can add their knowledge and insights to our stories.
That is invaluable.
We are making the subscriber-only change to support our valued readers, who tell us they don't want the site cluttered up with irrelevant comments, untruths and abuse.
In the past, the journalist’s job was to collect and distribute information to the audience. Technology means that readers can shape a discussion. We look forward to hearing from you on heraldscotland.com
Comments & Moderation
Readers’ comments: You are personally liable for the content of any comments you upload to this website, so please act responsibly. We do not pre-moderate or monitor readers’ comments appearing on our websites, but we do post-moderate in response to complaints we receive or otherwise when a potential problem comes to our attention. You can make a complaint by using the ‘report this post’ link . We may then apply our discretion under the user terms to amend or delete comments.
Post moderation is undertaken full-time 9am-6pm on weekdays, and on a part-time basis outwith those hours.
Read the rules here