MULTIPLE sclerosis a doubly brutal disease; as well as limiting the ability of sufferers and their families to live full and vibrant lives, the grim lack of viable treatments means doctors and nurses often have little hope to offer.
With this in mind, it is difficult to understand why health boards in Scotland, which has one of the highest rates of the condition on the planet, appear so reluctant to give patients funding to travel to England to see whether they would be suitable for a potentially life-changing stem cell transplant on the NHS.
Freedom of Information (FIO) enquiries by the Herald have established that at least 59 MS patients in England have undergone Autologous Hematopoietic Stem Cell Transplantation (AHSCT) on the NHS at hospitals in London and Sheffield, a procedure that, according to recent international studies, has shown impressive results. And it’s not only academics noting positive outcomes from the therapy; patients in Scotland desperate to try the treatment have paid tens of thousands of pounds to travel as far afield as Mexico and Russia to undergo the procedure, and have subsequently reported real and lasting improvements.
Despite this evidence, further FIO investigations reveal that no Scottish patients have been sent to London for the treatment, with those seeking referrals being told their health boards do not fund “experimental” treatments. And yet the English NHS does appear to deem AHSCT worthy for funding, surely highlighting a worrying postcode lottery that must be nothing sort of torturous for MS sufferers who would do anything to improve their health.
To add insult to injury, the bureaucracy all too often sends them round in circles, with the Scottish Government claiming they do send patients for “specialised” treatments in other countries - which one would assume includes England - on an ad hoc basis, but adding it’s up to health boards and clinicians, who then say the treatment is “experimental” and thus doesn’t qualify.
Clearly, all our health boards are under serious financial constraints during this time of continuing austerity, and must make increasingly difficult decisions about who and what treatments to fund across the entire spectrum of healthcare. Indeed, how to deal with this situation going forward is arguably one of the biggest questions faced by society.
But that will be of little comfort to the Scottish MS patients who see a potentially viable treatment that could transform their quality of life denied to them. And with this in mind, it’s surely time for our health boards - and indeed Health Secretary Shona Robison - to look again at AHSCT in light of both the medical and anecdotal evidence.
With so many MS patients being young people in the prime of their lives, surely they at least deserve the chance to see whether this treatment may work for them. After all, what price quality of life?
Why are you making commenting on The Herald only available to subscribers?
It should have been a safe space for informed debate, somewhere for readers to discuss issues around the biggest stories of the day, but all too often the below the line comments on most websites have become bogged down by off-topic discussions and abuse.
heraldscotland.com is tackling this problem by allowing only subscribers to comment.
We are doing this to improve the experience for our loyal readers and we believe it will reduce the ability of trolls and troublemakers, who occasionally find their way onto our site, to abuse our journalists and readers. We also hope it will help the comments section fulfil its promise as a part of Scotland's conversation with itself.
We are lucky at The Herald. We are read by an informed, educated readership who can add their knowledge and insights to our stories.
That is invaluable.
We are making the subscriber-only change to support our valued readers, who tell us they don't want the site cluttered up with irrelevant comments, untruths and abuse.
In the past, the journalist’s job was to collect and distribute information to the audience. Technology means that readers can shape a discussion. We look forward to hearing from you on heraldscotland.com
Comments & Moderation
Readers’ comments: You are personally liable for the content of any comments you upload to this website, so please act responsibly. We do not pre-moderate or monitor readers’ comments appearing on our websites, but we do post-moderate in response to complaints we receive or otherwise when a potential problem comes to our attention. You can make a complaint by using the ‘report this post’ link . We may then apply our discretion under the user terms to amend or delete comments.
Post moderation is undertaken full-time 9am-6pm on weekdays, and on a part-time basis outwith those hours.
Read the rules here